Art Quilt Completed

After about 6 months in the making, today I finally finished my first – and possibly last – quilt. This quilt was born out of an idea from Andrew: that we should make a quilt together.

Completed Quilt
He had his own ideas. A sea of aqua, turquoise, teal, blue and violet. A multitude of bright large format squares. I on the other hand wanted my usual earthy and autumnal tones. On the colour front, I’d say he got the lion’s share.

Gesso, the Squirrel cat

The construction didn’t quite take the format Andrew had expected. The pieces grew organically after the selection of the tree as the centre piece. We stencilled it with lumiere bronze paint together and I think at that point, he probably realised this wasn’t going to be a quick project. It was also not going to be without damage – at that particular stage, little flecks of bronze paint in his bathroom where I had washed out the stencil.

While he may have won on colour, I triumphed when it came to whimsy: the lizard in a teacup with a licorice allsort my favourite of the added amusements.

All cats feature: Saffron as a colour (poor Saff, it was the best I could do), Licorice as the aforementioned sweet, Pickle as his ginger self and Gesso as a purple squirrel. (The last act of the quilt was gluing on his eye today).

The black cat in the tree is the one Andrew wants that we don’t have.

Lizard hand applique

Lizards also abound – some with functioning legs and some without. It is these unique references which make this truly one of a kind. A quilt that could only ever be the story of the two of us.

For those who have see my art over the years, this probably comes as no surprise. Anything I create is made for the purposes of self-expression rather than for it’s aesthetic qualities.

The idea of buying a quilting ‘kit’ holds no attraction at all – unless there’s someone out there selling Alice in Wonderland tribute meshed with wheels, cats, curly-ques and lizards?

As this is my first quilt I could hardly draw on any quilting skills as reference, so I instead returned to my mixed media toolkit.


I hand carved a spiral stamp using lino tools and a piece of rubber and just swapped my traditional media for fabric ink.

The white rabbit in purple

On the white rabbit – which went purple – I had to turn to my long suffering sewing teacher for advice.

I stuffed him with toy fill, only he kept springing a leak. With some cajoling, he finally agreed to keep his innards, well… within.

I managed the white backstitch outline but the point of his umbrella had a distinct wonkiness. The umbrella you see in the finished product had some expert intervention to correct it’s trajectory!
Hand-quilting
I discovered that I had insufficient patience for large areas of hand-quilting – although I must admit it does have a strangely meditative quality. The small area of pink spiral patterned fabric on the top left is one of the few spots where I did try out the old fashioned way. While I could claim this was out of wanting to be traditional, in truth, it was just testament to my lack of free motion sewing skills. In the end the only area I was happy to free motion were the tree roots, for it mattered not how bumpy and gnarled they became as I covered up each of my mistakes.

The Tree
This free motion incompetence meant that I completed around each branch of the tree using a walking foot and turning the fabric. It was slow work which at times had me cursing Stencil Kingdom for not selling the tree stencil in a smaller size!

Quilt in black and whiteOther features are tiny in comparison – like a small trio of playing cards, or a teapot in the bottom right hand corner. Still I think they add something to the quilt and when you view it in black and white, it only serves to emphasise that together with the tree it’s these little areas of ‘light’ that pop out from all that purple.

 

Andrew still protests that it wasn’t bright enough – he wanted more pink and more yellow and red gingham (yes, can you believe it?). I on the otherhand wanted something a little less vibrant. That neither of us felt the colour is quite right, just goes to show that we did achieve a representation of us. It is neither his bright bold cheeky self, or my more muted tones, but somewhere in the middle. Today I looked at the quilt with more than a dash of pride. I’m not quite sure how I got to this point… how those ideas tumbled out… but I do know that we’ve created something we will both cherish for a long time. I have to say that I thought Andrew was a little nuts when he suggested we make a quilt. I’m glad he did.

The teapotPS: Acknowledgements & Materials

This quilt would not have been possible without the help of a special few and some amazing art suppliers out there.

I have to include a special thanks to The Stencil Kingdom, as without their business, that beautiful tree focal piece would not exist. Whoever was nutty enough to make a stencil with that many little twigs, I thank you. I’ve been buying stencils from this company in the UK for a number of years to use in my work. I don’t get them that often as postage from the UK is expensive however whenever I do, I add another tool to my art stash that’s definitely a keeper!

Embroidered playing cards

Fabric & Threads: Most of the fabrics have been sourced from Busy Bee Sewing, with just a couple of the Batiks from The Quilters’ Store. The stranded cottons and embroidery threads also came from Busy Bee and I just supplemented with a few special pieces from The Thread Studio in Western Australia (that gorgeous thick swirl at the bottom) and some I picked up from Room For Threads at the recent quilting show. (To the lady from this stall with the funky red glasses and clear passion for quilts, I assure you that both my and Andrew’s name and the date and the location are going on the quilt. Who knows where this quilt will end up after we are dead – hopefully not in the trash – but I agree it’s a lovely habit to get into signing and dating quilts just the same as we do other art forms).

Applique & Applicuts: To Kim Barter of Applicuts – a huge thank you. When I asked for a 3 inch squirrel as a special order, you obliged… the same with those doves! I know you weren’t sure what the hell I was going to do with them, or that they would become stencils in their own right, but I thank you for humouring me! (For anyone interested in the mileage I got out of a tool intended for applique: check out my earlier post).

Painting & Art Supplies: Thankfully, I really didn’t have to shop much – all the things I’ve accrued over the years came in handy. My old faithfuls – caran d’ache wax oil pastels – got a workout as well as the Golden Fluid Acrylics. Apart from some print paste, I really didn’t have to buy anything to paint that fabric. If anyone does need supplies, I get my Golden Fluid Acrylics from Alex at The Sydney Art Store. Actually, Andrew and I get almost everything art-wise there because it’s accessible (a rare thing for an art store) and Alex is just so helpful. I’ve even had times when Andrew has sent me in to buy a paintbrush and Alex has been happy for me to pluck a few out and go back out to the car so Andrew could choose for himself and then run back in to buy them. 

Embroidered Pickle Lastly, there are a few people I have to thank. (Yes, this is starting to sound like a bad award’s night speech).

To Bev Barter – dressmaking teacher extraordinaire. I’m not going to say that you are amazing woman, or a brilliant teacher, or an absolute hoot for company as I don’t want ANYONE else to want your teaching services for fear I will have to make way for new students! I want you to be stuck with me.

Seriously, thank you for fixing the licorice allsort, the rabbit’s umbrella, for teaching me french knots… oh… and how to quilt enough to get by on this project. Not that many people would have let a student do this as their first project. Which just goes to show you truly are one of a kind.

To Licorice, Saffron, Pickle and Gesso, thank you for all your assistance during the project. Sitting on the quilt was so helpful. Really.

Lastly, to Andrew for having the idea in the first place. For drawing that bloody woman, the white rabbit, helping to paint the tree, and all those little helpful comments along the way. Sorry about the pins I left in your couch, or all the threads that went into your vacuum cleaner! I know that you will forget all about these once you get to sleep under it and you are toasty and warm. You are a delight and a bugger at the same time. On this project I can truly say the idea was not mine alone, but mine.

All I want for Christmas is a wheelchair lifter

The car has been at the engineering shop for 2 weeks. The lifter has landed on the roof but apparently the seat modifications aren’t completed. Like nearly everything in the disabled world; it is happening very slowly. I am getting pre-Christmas crankiness.

Andrew and I went to the shops today – in my car. The wheelchair lifting part was all good – when we’re together that’s my job and I manage it with reasonable ease. The getting in and out of the car without a fixed transfer board – slightly more tricky. Not to mention that my car is somewhat smaller in the door cavity than his – really not ideal at all.

Pickup of the car is scheduled for Wednesday. I have my fingers crossed for Wednesday. And my toes. And my legs. I’m crossing everything.

Satin stitching the wheel on the quilt

Satin stitching the wheel on the quilt

In the meantime I’ve started to stitch the wheel onto the quilt. My first attempt looked like a pizza. A blue and purple pizza but a pizza just the same.

My second attempt, I cheated. I used the wheelchair wheel and like a 3rd grader – traced it! Harder than you may think as the wheel is not perfectly flat.

Then when it came to the stitching I found that the top layer was all puffy. All those hand basting stitches to keep the batting, backing and top together weren’t holding it down enough. So, with some swearing under my breath, I set about unpicking 2mm satin stitching.

I dragged the quilt to the armchair – I may as well be comfy.

Licorice appeared. Licorice was persistent. We reached a compromise. She could sit on the piece of fabric resting on the footstool as long as I could hold on to the end I was still unpicking. Minutes later – Saffron wanted her share of the quilt. Nevermind that Licorice was already sitting on it; she just climbed up and wriggled her way in. The funny part was watching her slowly descend. It wasn’t a quilt – it was quick sand. For Saffron had decided to sit on the quilt but between the footstool and my on the armchair. Eventually I gathered up enough of the fabric and pushed her enough onto the footstool that she stopped sinking.

Of course I just had to take a photo.

Double trouble on the quilt

Double trouble on the quilt. Licorice (left) and Saffron (right).

The cat who dislikes bipeds

The wheelchair may freak the cat out, they said. They may run from the wheelchair. It may be big and scary.

To that, codswallop say I!

Gesso is doing his usual and running away from me again. I go to pat him, approaching slowly and so he can see me coming. He runs away.

‘Hop in the wheelchair’ says Andrew.

I jump in. Gesso stops and looks.

Andrew prompts: ‘Give him the signal’.

I move the fingers on my hand like a quacking duck. (Andrew has been trying to teach Gesso that this signal means come. Teaching a deaf cat – good luck with that. A regular cat is bad enough at coming when called!)

To my surprise, this bundle of white fluff, runs back towards me. I pat his head. He is no longer terrified.

IMG_2936So it would seem that Andrew’s theory is right. Far from being scared of the wheelchair, as some feared he would be, he is afraid of bipeds! How strange I must seem – this tall creature that moves quickly through the house.

It’s been a tough couple of weeks catwise, what with losing chilli and now, since Tuesday, Saffron having acute cystitis. She’s been to the vet – TWICE – and is going back tomorrow. Third time lucky? She has improved ever so slightly (meaning less blood; still frequent – small – urination).

The upshot of all this is Saffron has been confined to the bathroom for the past few days. I’m sure that this freaks her out a little more, however, she is wee-ing (or at least attempting it) so frequently that I can’t trust her outside the bathroom.

Licorice is highly unimpressed as she too, has been calling the bathroom home for the past 4 days. (The girls don’t like separation and I have few other places to put a litter tray should I lock Licorice out of the bathroom). So I am left with one cat who squats frequently and one who is just plain grouchy. She lets me know of her displeasure at every possibly opportunity.

So it would seem there is one member of my furry flock left; is he grumble-free? Well, bipeds are most certainly ok with Pickle. As far as I know, his bathroom business is all in tact and he has the run of the house. So all in all, I think the ginger ninja is a happy camper. Here’s a photo I captured of him earlier this evening.

HIs whiskers look rather grand in profile!

HIs whiskers look rather grand in profile!

Why I gave back some of my pay

My text message conversation went something like this:

Me: “I refused some of my pay today.”

Andrew: “What??? Have you gone soft in the head?”

Me: “No. I’ve just seen the end of year forecast for work. We are facing a massive shortfall. We have over 300 deaf kids to help and I’ve just seen a letter from the state government saying we are only funded for 45.”

Andrew: “Oh. Got it now. Not soft in the head at all. As you were.”

This news comes around the same time that Andrew and I finally get to drop off the car to have the wheelchair lifter fitted. 6 months ago, I rang charities asking for help to fundraise for this vital equipment. One charity said if we could prove Andrew had his neuro-muscular condition before he was 18 then they could help… but there was a 2 year waiting list. Another told me how hard it was to get funding and then sent me information about a government scheme. The scheme was only for  families and even if we had been eligible, it was a drop in the ocean compared to the real cost. I rang another charity – yes, we help with making vehicles accessible for wheelchairs – but only for children!

Despairing that our need didn’t seem to fit into anyone’s criteria, I didn’t know where to turn. I told my boss and my colleagues what was happening. They didn’t blink.

‘We’ll help.’

In the coming weeks, friends, colleagues and people who were brand new to the Organisation, and didn’t know me from a bar of soap rallied around. People gave up time after work and on the weekend. Some donated goods for the garage sale; others came to the fundraising dinner; a group of ‘cake bakers’ sprung into action; a sausage sizzle was organised along with a cheese stand. Many gave private donations. I was absolutely blown away.

Today, someone asked me how the Shepherd Centre was different to other services. It’s hard to answer – not being an employee, a recipient, or an observer of those other services. But I felt I could say one thing with confidence: it’s not in the Shepherd Centre spirit to turn people away. If help is desperately needed, help is given. The things people did for Andrew and I – on their own time – was consistent with what they do for our families. I admire their passion and dedication and think myself lucky to work with such a fantastic group of people.

My friends and colleagues at The Shepherd Centre supported Andrew and I in ways for which I can never thank them enough. Giving up a little of my pay was the least I could do right now.

If you are thinking about giving a donation to a charity this Christmas, please consider The Shepherd Centre. For more information see the following article:

Government funding cut despite record number of children at The Shepherd Centre

Disclaimer: the above is my own personal opinion. I would also like to stress that all assistance provided to Andrew and myself was on people’s own time and independent of the Organisation.

Weekly Photo Challenge: Thankful

Andrew sitting in his new ‘lifter friendly’ wheelchair for his car.

How fitting that the Weekly Photo Challenge is ‘Thankful’. It’s been playing on my mind all week. What I am thankful for won’t be a surprise to many of you. It’s for 2 rather expensive pieces of metal! (For anyone who is new to my blog you can find the full story here).

Of course, I love these pieces of metal not for what they are but for what they will enable Andrew to do. The first arrived a little while ago – a wheelchair that was ‘lifter friendly’. (The only lifter that suited Andrew’s present chair was $14,000 by itself, so we opted for a new chair and a different lifter which combined was slightly less expensive).

This folding chair is also in colours matching the cats. Gesso white and Pickle orange. This was not deliberate. Indeed Andrew seemed quite miffed when I pointed it out.

The second hunk of metal – a wymo wheelchair lifter – is booked for fitting to the car on Friday. After 5 long months, it can’t come a moment too soon. More and more Andrew has been struggling to leave the house without a wheelchair assistant at either end. In the afternoons when he’s used up a lot of the energy he has, it’s much tougher and by evening it’s impossible.

But I don’t want this post to be about how hard it is. Rather, it should be a ‘hats off’, ‘glasses raised’ and overwhelmingly tight hug to all of you who helped us to raise the funds for the equipment. When I think about the generosity you have shown Andrew and I, well… I still get very teary. Help came from family, friends, colleagues and strangers. You sent messages of support that made us feel like this was achievable – and achieve it we all did. For that, I will always be thankful.

Happy birthday Bruce

This week Bruce turned 80.

I’ve never met Bruce yet I believe I have a strong sense of him. Bruce is a man who I see as – in the Australian vernacular – as a bloody determined man. Bruce and his wife Annette in the late 60s started their family. To their shock, both children were born deaf. Surveying what services were available in Australia to help children with a hearing loss communicate, Bruce wasn’t happy!

He wanted children who were deaf or hearing impaired to learn to speak, enter mainstream schools and take up mainstream jobs. As he believed there were no suitable programs in Australia for this, he started his own based on the John Tracy Clinic in Los Angeles.

Over 40 years later, I have the pleasure of working for The Shepherd Centre, the Organisation he and his late wife Annette founded. While they may have started using the John Tracy Clinic as a base, I suspect The Shepherd Centre has grown organically into a place founded on those principles but with a distinctly Australian bent.

Dr Bruce Shepherd

My road to the Shepherd Centre has been a little odd. Unlike many colleagues who knew they wanted to work with children who have a hearing loss, my only career specification was to remain with the not for profit sector. When I first started there and people talked about the cochlea, auditory nerves and sensory neural losses, I used to say I’ve been working for 10 years with eyes, not ears!

Despite my initial bamboozlement – should that be a word – it wasn’t long before I found my feet and I must say a fascination and deep respect  for what many of my colleagues do. Last week I got to join a group of masters students (soon to be speech pathologists) in observing an Auditory Verbal Therapy sessions with a 2 1/2 year old girl and her mum. While I know that both mum and Shepherd Centre staff member were working very hard trying to teach the little girl, at times, it was hysterical and just looked like loads of fun – not to mention mess! (My brave colleague thinks nothing of giving 2 1/2 year old children a tub of yoghurt or a bottle of food colouring). At one point I laughed so hard, I had tears running down my face.

My encounters with the children are brief – usually in the lobby, outside, or in the kitchen. (Although, the other day I was having a discussion with my boss when a little boy walked in unexpectedly asking for his pirate hat to be repaired!)

It was in the kitchen one day that I had a funny little encounters. I walked in to make myself a cup of tea to discover that a ‘therapy session’ was taking place in the kitchen. There was mum, two kids – a boy and a girl – and one of my colleagues. ‘We’re baking!’ the little girl excitedly announced as I walked into the room. Baking mini cupcakes actually. At this point I wasn’t sure if it was the boy or girl who had a hearing loss. About half an hour later, a host of other kids had arrived for a weekly group session. We were a bit short on staff, so I went outside to help ‘supervise’. (Yes, I know – me with children. I still feel more at ease with the furry variety!) There was the little girl and my colleague Jen icing the cupcakes. Spotting the aids this time, I knew it was the girl who had a hearing loss. (Many of the kids speak so well, that it’s hard to tell!)

‘Can I have a cupcake?’

She was engrossed in icing them, so Jen prompted her:

‘Are you going to make one for Lysh?’

‘Yes!’

And with that I was given a mini iced cupcake. I looked at the little girl’s hands. She had icing all over them.

Jen said to her ‘what do we do when our hands get dirty?’

Her response:  ’LICK THEM!’

Canberra Shepherd Centre’s 10th anniversary

Over the years The Shepherd Centre has helped more than 1,000 children develop spoken language. (Yes, you can see who the database person is! Unlike the pictures, I didn’t steal the number from their website.)

I have no doubt that Bruce ticked more than a few people off over the years in his dogged determination to establish a program which taught only speech, not sign. As for the people he annoyed, I daresay he wouldn’t care! Bruce and his late wife Annette, added another choice of service for parents and that can only be a good thing.

This week on facebook there have been a collection of stories about some of the children the Shepherd Centre has helped in celebration of Bruce’s birthday.  There have also been a number of comments from Bruce’s family as well as past and current parents. I thought I’d finish this blog post with just one of them from a mum. (See The Shepherd Centre’s facebook page for more).

Happy Birthday Bruce :) The Shepherd Centre is amazing.  We wouldn’t be where we are today if we didnt have it….everytime i get a comment like “wow you would never know she is deaf” and my daughters latest public speaking award, we owe it all to you and the staff. Without you none of this would be possible.

Disclaimer: The above blog post contains my personal views and opinions and should not be attributed in any way to my employer. (It’s sad that we have to write such disclaimers in social media… but that’s a whole other blog post!)

When disability is no slow dance

Andrew and Gesso

Can you imagine watching the person you love lose their ability to be independent?

I know some of you absolutely know what this is like.

After working in the disability sector for a while I know that much is done to show what people with disabilities can do. Slogans such as ‘don’t ‘dis’ my ability’ being a perfect example. People I know who have a disability often inspire me with their resilence, persistence and ingenuity.

Yet, some days there’s no pretty side. It’s just bloody hard.

Regular readers of my blog will know I’ve been dating Andrew for a couple of years now. Over the last couple of years I’ve watched as Andrew’s muscles have further wasted away. Things he could do two years ago, he absolutely can’t today. I remember about 18 months ago, Andrew and I attempted to ‘slow dance’. Looking back on it, how ridiculous were we? A guy who couldn’t walk unaided, cannot lift his feet properly, trying to slow dance. Andrew got himself to vertical. He held on to a table with one arm and to me with the other. We had the music on – candles too – but we didn’t actually move!

While slow dancing is clearly history, I’m not ready to let go of Andrew leaving the house independently just yet.

It’s hard to describe what Andrew goes through to get in and out of the car, so we took a video. Lately, it’s been getting harder and harder. Some days, Andrew just physically does not have the muscle strength to lift the wheelchair into the car. So he stays home. 40 is too young to be confined to the house! 

The hardest thing is there are options out there, he just can’t afford them.

We’ve tried approaching charities for help with vehicle modifications. It’s been tough. I can understand why there are such high frustrations in the community of people living with disability. I got sick of being asked – ‘is it for your son?’

No. It’s my boyfriend.

‘Oh, we only help children.’

Or worse:

‘yes, we can help, but we have a 2 year waiting list.’

So, we are trying to raise the money ourselves. I’ve never attempted to raise money for anything before. While I have always worked for charities which rely on donations to keep going, I’ve never been the one calling charities asking for help.

We first looked at the Abiloader, which was going to cost at least $15,000. Now we have found a plan B, which is $8,500.

Please, watch the video and if you are moved by it, please help by making a donation and/or sharing it among your friends.

Thank you.

Link to video or view below.

You can read more of Andrew’s story on his blog.

Donations of support can be made via:

St.George Bank of Australia
Fund raising account number: 485 558 044
Branch/bsb number: 112-879
Account name: Geoffrey Andrew Grant
Andrew’s email address if thenihilistfish@gmail.com if you want to contact him or just ask him anything. If you subscribe to his blog (or if you’re already on mine!) we will keep you updated.
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